Health QuestionsCategory: MedicationsAnybody else with Narcolepsy?
LCroft asked 2 years ago

I know that Provigil is perscribed for a lot of other stuff, but does anyone else actually have narcolepsy?  I have bipolar and narcolepsy and they must be connected.  I take a non-convulsant (trileptal) for mania and an anti-depressant (Effexor) for cataplexy, a muscle-paralysis symptom of narcolepsy that looks like a combination between a seizure and fainting.  One is perscribed by my psychiatrist and the other is perscribed by my neurologist.  I keep them both informed, but it’s not like they’d ever work together.  The weirdest thing about cataplexy is that is is emotionally triggered: usually laughter, but also anger and fear.      Someday someone will figure this all out.  
 
Anyway, Provigil changed my life.  Before, I couldn’t stay awake for 6 hours at a time.  I didn’t think I could ever hold a normal job, and actually, a lot of people with narcolepsy get disability for that reason.  Plus, now, I have much more awareness of getting tired.  It’s not all or nothing.  Definitely much safer and less embarassing.  Anyway, I don’t think I have any side effects from Provigil.  I just get worried about over-using it since it does work so well.

LCroft asked 3 years ago

I know that Provigil is perscribed for a lot of other stuff, but does anyone else actually have narcolepsy?  I have bipolar and narcolepsy and they must be connected.  I take a non-convulsant (trileptal) for mania and an anti-depressant (Effexor) for cataplexy, a muscle-paralysis symptom of narcolepsy that looks like a combination between a seizure and fainting.  One is perscribed by my psychiatrist and the other is perscribed by my neurologist.  I keep them both informed, but it’s not like they’d ever work together.  The weirdest thing about cataplexy is that is is emotionally triggered: usually laughter, but also anger and fear.      Someday someone will figure this all out.  
 
Anyway, Provigil changed my life.  Before, I couldn’t stay awake for 6 hours at a time.  I didn’t think I could ever hold a normal job, and actually, a lot of people with narcolepsy get disability for that reason.  Plus, now, I have much more awareness of getting tired.  It’s not all or nothing.  Definitely much safer and less embarassing.  Anyway, I don’t think I have any side effects from Provigil.  I just get worried about over-using it since it does work so well.