Health QuestionsCategory: TreatmentsDoes anyone else get familial Hemiplegic Migraine?
Anonymous asked 3 years ago

I started getting them when I moved to Alberta 10 yrs ago. Hey, maybe it’s this province that brings them on Wink
 
Here are the symptoms, as they aren’t very common:
 
A frightening attack of sudden onset of unilateral weakness (one-sided weakness).  
Weakness may involve face/arm/leg.  
If the right side of the body is the affected side, the individual may not be able to speak.  
May be triggered by mild head injury.  
There is a familial form, with a first degree relative affected. (i.e., father, mother, uncle, aunt)  
The headache follows the onset of weakness.  
The weakness may last one hour to days, but usually resolves in 24 hours.  
The familial form has been identified on chromosome 19 in 50%-60% of cases.  
 
With me, I get temporary blindness in one eye first, then the one sided weakness. It’s like a mini-stroke. Hence the reason I’m afraid of menopause. I can’t take any amount of estrogren. Because of this type of migraine if I take hormone replacement therapy or the pill etc, my chances of having a stroke are like 1 in 20.
 
I just wondered if anyone here gets them, and how they deal with them?
 
T.

5 Answers
Kassiane answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
I have a good friend who has them, they changed her dx from basilar migraines to these…she got it from a head injury.
 
She’s riding the med go round and she takes a lot of naps. She’s also working on identifying triggers so as to avoid them.
 
Kassiane

Anonymous answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Interesting. I had a severe concussion many yrs ago. But my neurologist indicated they were hereditary so I figure she’s right.  
 
However she’s also the woman who refuses to prescribe anything for these scary thing, that are increasing in frequency. So I’m seing my GP for a referral to another neurologist tomorrow afternoon.
 
I had one after another last Friday which has NEVER happened in my life.
 
They are like mini strokes and still scare me even after all these years.
 
I only know a few of my triggers (the lights at Costco or WalMart, humity and heat, flourescent light..so most are turned off round my desk at work). But mostly they come out of nowhere and I lose sight in one eye first. I have 10 minutes to warn those around me that I will then lose the ability to speak, I will lose the use of one of more hands and be unable to understand what it going on around me and remain blind in one eye.  There are a couple of things that MAY help immed. One is a cup of black coffee. The other I can’t mention. And again, that will take the blindness away only , but not the speech or comprehension loss.
 
But again, they still scare me.
 
Thanks
T.

StrungOutOnLife answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Topiramate Extends the Therapeutic Window for Hypothermia-Mediated Neuroprotection After Stroke in Neonatal Rats
 
Just so you know there’s a chance you’re not completely screwed if those really are strokes.

Anonymous answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Thanks!  I think….

StrungOutOnLife answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Quote from GADabout on 03. Aug 2006 at 12:31:

Thanks! I think….

You’re welcome.

Anonymous asked 3 years ago

I started getting them when I moved to Alberta 10 yrs ago. Hey, maybe it’s this province that brings them on Wink
 
Here are the symptoms, as they aren’t very common:
 
A frightening attack of sudden onset of unilateral weakness (one-sided weakness).  
Weakness may involve face/arm/leg.  
If the right side of the body is the affected side, the individual may not be able to speak.  
May be triggered by mild head injury.  
There is a familial form, with a first degree relative affected. (i.e., father, mother, uncle, aunt)  
The headache follows the onset of weakness.  
The weakness may last one hour to days, but usually resolves in 24 hours.  
The familial form has been identified on chromosome 19 in 50%-60% of cases.  
 
With me, I get temporary blindness in one eye first, then the one sided weakness. It’s like a mini-stroke. Hence the reason I’m afraid of menopause. I can’t take any amount of estrogren. Because of this type of migraine if I take hormone replacement therapy or the pill etc, my chances of having a stroke are like 1 in 20.
 
I just wondered if anyone here gets them, and how they deal with them?
 
T.

5 Answers
Kassiane answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
I have a good friend who has them, they changed her dx from basilar migraines to these…she got it from a head injury.
 
She’s riding the med go round and she takes a lot of naps. She’s also working on identifying triggers so as to avoid them.
 
Kassiane

Anonymous answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Interesting. I had a severe concussion many yrs ago. But my neurologist indicated they were hereditary so I figure she’s right.  
 
However she’s also the woman who refuses to prescribe anything for these scary thing, that are increasing in frequency. So I’m seing my GP for a referral to another neurologist tomorrow afternoon.
 
I had one after another last Friday which has NEVER happened in my life.
 
They are like mini strokes and still scare me even after all these years.
 
I only know a few of my triggers (the lights at Costco or WalMart, humity and heat, flourescent light..so most are turned off round my desk at work). But mostly they come out of nowhere and I lose sight in one eye first. I have 10 minutes to warn those around me that I will then lose the ability to speak, I will lose the use of one of more hands and be unable to understand what it going on around me and remain blind in one eye.  There are a couple of things that MAY help immed. One is a cup of black coffee. The other I can’t mention. And again, that will take the blindness away only , but not the speech or comprehension loss.
 
But again, they still scare me.
 
Thanks
T.

StrungOutOnLife answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Topiramate Extends the Therapeutic Window for Hypothermia-Mediated Neuroprotection After Stroke in Neonatal Rats
 
Just so you know there’s a chance you’re not completely screwed if those really are strokes.

Anonymous answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Thanks!  I think….

StrungOutOnLife answered 3 years ago

Re: Does anyone else get familial Hemiplegic Migra
Quote from GADabout on 03. Aug 2006 at 12:31:

Thanks! I think….

You’re welcome.