tsavorite asked 3 years ago

so the good news is that I’m in way less (if any) of a mixed state than I’ve been in for forever and a day.  The bad news is that I’m running on empty, always.  I know the meds are only one componant of this — I may be manic or hypo manic, but life is damn all busy too.  
 
I’m at 175 a day of lamictal.  100 a day of Topamax (25 at 6:15, 25 at 1, and 50 at 9, or bedtime, whichever seems more appropriate).  Theoretically I’d go up another 25 on the lamictal on friday, but I may call and see about holiding off on that, cause I’m not doing badly except for the exhaustion.  At least I’m doing way better than I was before.
 
I’m still taking .5 of clon. twice in a day.  My energy runs out easily.  But some of that is physical too.  I was able to do stuff at home that didnt’ involve a lot of moving around for several hours this morning — I cleaned my sewing machine (not used for years!) in places it may never have been cleaned before, and then was able to mend things tonight!  I took the kid to three stores with me, forgot to eat, and was wiped out to the point of tears — and most days I’m pretty close to that point, kid or no.
 
Most days I’m also following a lamb (yes, baby sheep) around, he’s fostered out for the weekend, phew), in another week or two he’ll move to the barn, when he stops needing quite so many bottles during the day.  He’s similar to a nekked one year old human.   Of course, with him gone for the weekend, there are seven chicks in my bathroom, and two moms with accompanying kids coming over to help clean and work with wool tomorrow.  If I’m lucky I’ll nap in the morning before they come!  My allergies and or asthma is in  full swing.  I’m on non-steroid meds for those – steroids kick off mania.  I’m eating fairly  normally, other than the ocasionall forgetting.
 
I’m able to think more, get more done, function more than I was before.  If you discount the mild Jamis Vu, and the um, er, uh, aphasia (which, in truth, has been around nearly 20 years, but is a little stronger now), life is better.  I have no complaints about these items in the trade off.  For all I know the exhaustion could b e  just because I was in neutral for so long and now I’m not.  I don’t see anything in either the Lamictal or the Topamax info on Crazy Meds that makes me think they should cause it, some is muscle stuff though, so it could be a weird version of Lamictal’s muscle soreness.
 
Any comments, thoughts or suggestions?

6 Answers
gretl answered 3 years ago

Re: exhaustion
Quote from tsavorite on 26. Mar 2006 at 00:47:

Of course, with him gone for the weekend, there are seven chicks in my bathroom, and two moms with accompanying kids coming over to help clean and work with wool tomorrow.

OK, so now you’ve got chickens and goats too?!?
 
Like you say, too many factors to pinpoint a good guess.  I was really sleepy for a few weeks towards the latter half of my Lamictal titration.  It could have been the combination of Lamictal and Trileptal (but the Trileptal had gotten fairly low by that point, and I’ve seen a couple other people complain of this with Lamictal … Adieu, maybe?)  It passed, and then the Lamictal started keeping me awake at night, so I divvied up the doses.  I know Rowan has had trouble with too much Topamax making her very tired, but 100mg is still pretty low and you’re already spreading it out.
 
I think I’d be inclined to continue with the Lamictal titration a bit, and then wait out the spring allergy season before really trying to get a definitive answer.  I would imagine this whole “difficulty breathing” thing can take a lot out of you, not even getting into the sedative effect of most non-steroidal allergy meds.
 
I’m really happy to hear the meds are finally helping with the moods from hell.

tsavorite answered 3 years ago

Re: exhaustion
Quote from gretl on 26. Mar 2006 at 08:10:

Quote from tsavorite on 26. Mar 2006 at 00:47:

Of course, with him gone for the weekend, there are seven chicks in my bathroom, and two moms with accompanying kids coming over to help clean and work with wool tomorrow.

OK, so now you’ve got chickens and goats too?!?

 
Well, now that you mention it, no.  About three dozen of the former (plus the seven in the bathroom, which go home with one of the mom’s today) and two dozen of the latter, due to be somewhat culled down, since due to hell year last year (why can’t bulliten board code and html code be the same for those of us who type it?  why?)  Or maybe hell decade.  Or just hell since the change of whatever the hell changed when we went from the 90’s to the 00’s.  (Found pictures of me from when my daughter was an infant, I look like a different person — way less stressed, genuinelly happy at times… it’s sad now to see the pics.)  Any way remind me in Seattle and I’ll give you a farm business card.  It probably didn’t help that I was one of the sheep dogs for shearing day, or pre shearing day, but I didn’t have to wrangle any sheep at least.
 
Yes, the allergies and breathing vs not breathing vs falling on my ass coughing thing could well be contributing to the exhaustion.   I just don’t know.  It’s the “I just walked up that damn mountain and WTF made me think I could actually do that I’m never moving again!” sort.  Daily.  From doing fairly normal daily things.  I’m wearing a pedomiter — it claims I go from 1/2 to 3 miles in a day, some is up and down stairs and trotting to keep the lamb’s attention, which I know is good for me, but is hard on the legs, which is why I feel it the most.  Propping legs up helps some.   Taking calcium has not helped yet, and usually it does, but I”m being cautious with it, cause I haven’t looked it up with meds yet.  Taking B vitamins hasn’t really helped yet, although I keep hoping.  I feel as if all the something has been drained out of my muscles — sometimes I used to feel this way when I menstruated, at pre age 20 or so, I wonder if I might be anemic… I could probably get that checked easy enough.
 
Aside from all the annoyance, the added exhaustion is both makin’me crazy (ier) and making me worry that  thre’s something else wrong that’s just not found yet.  Both probably over reacting, but also one-more-thing that I need like the provibial hole in my head…. gotta go see the  piercers too, another thing to fit in.  : – )

gretl answered 3 years ago

Re: exhaustion
Quote from tsavorite on 26. Mar 2006 at 08:40:

(Found pictures of me from when my daughter was an infant, I look like a different person — way less stressed, genuinelly happy at times… it’s sad now to see the pics.)

Last week, we chanced to watch some video of when my youngest was a year old.  My husband was bawling like a baby by the end, seeing the change in ALL of us since that time.  It’s a rocky road.  {genuine gentle hugz}
 
Quote:

Aside from all the annoyance, the added exhaustion is both makin’me crazy (ier) and making me worry that thre’s something else wrong that’s just not found yet. Both probably over reacting, but also one-more-thing that I need like the provibial hole in my head…. gotta go see the piercers too, another thing to fit in. : – )

Holes … hee …
 
You might recall, when I was having that period of sleepiness a month or so back, I started seriously wondering about sleep apnea again.  I think that’s probably on your short (not-so-short?) list of “what else could be wrong with me” too.  
 
Other than that, stress and inadequately treated mood disorder drove my body to/over the brink of chronic fatigue syndrome, ‘member?  I had a bazillion specialists pronounce me perfectly healthy, yet I couldn’t walk to the mailbox.  At that point, it wasn’t sleepiness – I was sleeping like the dead – it was wide-awake exhaustion.  I finally got help getting back on track from a naturopath (yeah yeah, everyone, I know — quackwatch and all that!  But I got a good one, and you know I do my own research.)  I mention it here because of a discussion I had with him last month.  I’ve been getting weekly injections of B12 combined with a B complex and folic acid for the past 16 months.  When I go more than two weeks between shots, my energy levels start to slip.  I asked the guy why that was, and if I was going to need this for the rest of my life, and why no one else seems to need it (waaa!)  He mentioned some of the research going on with genetics, homocysteine levels and B12, yadda yadda … then said something like “You know, as long as you have such a stressful life, your body may just keep sucking down the B’s and need this level of replenishment.”  So for now it’s like crazy meds to me … I’m just relieved there IS something that helps.  
 
Which is a roundabout way (“grownups talk too much”) of getting to:  
1) the B’s are good to look into, and I think it takes awhile for them to build back up; and  
2) you might check with someone (GP and/or otherwise) about evaluating your levels and giving you shots.  
It’s a thought, anyway.  I’m betting your body has just been stressed to the breaking point with all that’s gone on in the last few years, and it might need a jump start on the road back to physical resilience.
 
Not that you shouldn’t get a full physical work-up with your GP too.  Get your ass to a doctor and start checking it out, woman!  Anemia … thyroid (oh yeah, he has me on that too) … a lot of that stuff is easily evaluated, like you say.  (Huh, listen to me, going all Miss Bossy on you.  Ha.)

tsavorite answered 3 years ago

Re: exhaustion
I have one answer for the exhaustion, although I think the exhaustion is more the cause than the effect — as of today I am officially diagnosed with The Flu — the viral cough your lungs up sort.  Dr said if I’d gotten a flu shot I wouldn’t have gotten it.  Ha.  If I’d gotten a flu shot, and last year when they were studying their data to see which flues were most likely to be the ones that hit this year, they were truly correct in their conclusions, then I might not have gotten it.  Maybe.  If my immune system were even up to standing up to the vaccine.  I’ve been pretty damn run down for a long time.
 
So I don’t really think I am exhausted because I have the flu, but that I have the flu, in part, because I’ve been running so exhausted.  And I’m damn well supposed to be in Seattle driving (or for me, possibly riding and knitting) Thursday, hanging out Friday and Saturday, eating a good breakfast and then driving back again Sunday.  
 
I’m taking a twice a day anti viral thing that’s aimed at the flu.  If I’m lucky it will knock it back a little   I should check it out for conflicts with my crazy meds, but today all that was on the agenda after a long drive into town to collect the lamb from his weekend sitters, waiting forever at the urgent care for them to decide why I was sick (nose culture and all) waiting more for the prescription (“patient is waiting, put this one on the slow mule train…”) was going back to bed.  We’ll stay home tomorrow and the next day, with me resting as much as possible, with kid.  Kid had friend over today, to let me rest — his mom took over and I went and slept for I have no clue how long — two or three hours, until my pain pills had worn off and the chills and aches were back strong.
 
 
I think there was more I was going to add, but I’ve lost it again now — big surprise there.  
 
 
Oh yeah, driving home Spouse hit a deer — I was sleeping, opened my eyes in time to see deer feet flying.  It was that or an oncoming car.  He went back after getting me and kid home, someone else had stopped and made sure deer was not suffering, Spouse brought it home to process rather than waste.  Just one more damn thing.  At least it wasn’t me driving, I’d be much more upset over it all, well, if I weren’t so sick and drugged due to sick.  Bleh.

gretl answered 3 years ago

Re: exhaustion
Oh man, that sucks rocks.  I agree that you probably got the flu cuz you were run down.  Makes total sense.  We’ve never tried antivirals … I hope that stuff kicks ass on your yuckies.  Take care of yourself….