Health QuestionsCategory: TreatmentsVNS- anyone with any experiences?
jookeyman asked 3 years ago

I talked to my Tdoc today and he brought up the possibility of VNS implant. He also told me that I was one of the toughest cases he has seen and that VNS could help me if I decide to go that route. Being this procedure is fairly new, I was wondering if anyone here has had it done and your results thus far.
 
I’m not bragging about this, believe me. I wish I never had this crap. But something isn’t working (at least not well). It’s called my brain (and my meds). Too many recurring symptoms. Too many drugs don’t work or cause bad or paradoxical reactions. Four years and only a few months of temporary relief.
 
Peace
 
Jook

10 Answers
StrungOutOnLife answered 3 years ago

Re: VNS- anyone with any experiences?
I’m afraid it hasn’t really been studied for bipolar disorder.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
There have been patients (or should I say doctors?) trying this method. I remember reading a few posts on the old board or somewhere else. Can’t remember where.
 
If I remember it is an implant similiar to a pacemaker that sends pulses to the vagal nerve and regulates activity there.
 
Peace
 
Jook

Kassiane answered 3 years ago

Re: VNS- anyone with any experiences?
I’m trying like hell to get one, seeing as meds all try to kill me, don’t work, or both…this TH I really am asking pdoc how many pill bottles montana needs me to have before they’ll pay for it.
 
Kassiane

crazema answered 3 years ago

Re: VNS- anyone with any experiences?
Hello. I have a VNS implant which I’ve had for a year but I have no idea if its working because as most people on this site already know my recent history and have just changed meds so feeling not good. The few weeks after the op is what I would suppose it feels like to have a ‘boob job’ done. I have two 2inch scars but not extreme. No side effects for me except teeth grinding occaisionally since it started but it may be unconnected.  It affects your speech when it comes on but its like a bad cold. The biggest problem is how long it may take to work, it appears to be different for each person. Just ‘Google’ VNS or try the Ninewells/Dundee University website. Thats the hospital I went to, Dundee, (Tayside, Scotland).
Theyre a teaching hospital. As far as I understand my VNS is part of a study , I have to see a psychdoc every 2 weeks/month initially plus some testing of memory/cognitive skills over a period of time.  Hope some of this is of use.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
Crazema-
 
I assume by your statements that you still take meds? That sucks. I would think the whole concept of VNS would be to eliminate the need for meds. Did you have to sign a disclaimer?
 
My wife has an electrical implant in her neck that blocks pain signals to her brain. I would presume the VNS implant is similiar in some respects. Can you adjust pulse rate and intensity yourself or is it preset by the technician?
 
Jook

jookeyman asked 3 years ago

I talked to my Tdoc today and he brought up the possibility of VNS implant. He also told me that I was one of the toughest cases he has seen and that VNS could help me if I decide to go that route. Being this procedure is fairly new, I was wondering if anyone here has had it done and your results thus far.
 
I’m not bragging about this, believe me. I wish I never had this crap. But something isn’t working (at least not well). It’s called my brain (and my meds). Too many recurring symptoms. Too many drugs don’t work or cause bad or paradoxical reactions. Four years and only a few months of temporary relief.
 
Peace
 
Jook

10 Answers
StrungOutOnLife answered 3 years ago

Re: VNS- anyone with any experiences?
I’m afraid it hasn’t really been studied for bipolar disorder.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
There have been patients (or should I say doctors?) trying this method. I remember reading a few posts on the old board or somewhere else. Can’t remember where.
 
If I remember it is an implant similiar to a pacemaker that sends pulses to the vagal nerve and regulates activity there.
 
Peace
 
Jook

Kassiane answered 3 years ago

Re: VNS- anyone with any experiences?
I’m trying like hell to get one, seeing as meds all try to kill me, don’t work, or both…this TH I really am asking pdoc how many pill bottles montana needs me to have before they’ll pay for it.
 
Kassiane

crazema answered 3 years ago

Re: VNS- anyone with any experiences?
Hello. I have a VNS implant which I’ve had for a year but I have no idea if its working because as most people on this site already know my recent history and have just changed meds so feeling not good. The few weeks after the op is what I would suppose it feels like to have a ‘boob job’ done. I have two 2inch scars but not extreme. No side effects for me except teeth grinding occaisionally since it started but it may be unconnected.  It affects your speech when it comes on but its like a bad cold. The biggest problem is how long it may take to work, it appears to be different for each person. Just ‘Google’ VNS or try the Ninewells/Dundee University website. Thats the hospital I went to, Dundee, (Tayside, Scotland).
Theyre a teaching hospital. As far as I understand my VNS is part of a study , I have to see a psychdoc every 2 weeks/month initially plus some testing of memory/cognitive skills over a period of time.  Hope some of this is of use.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
Crazema-
 
I assume by your statements that you still take meds? That sucks. I would think the whole concept of VNS would be to eliminate the need for meds. Did you have to sign a disclaimer?
 
My wife has an electrical implant in her neck that blocks pain signals to her brain. I would presume the VNS implant is similiar in some respects. Can you adjust pulse rate and intensity yourself or is it preset by the technician?
 
Jook

jookeyman asked 3 years ago

I talked to my Tdoc today and he brought up the possibility of VNS implant. He also told me that I was one of the toughest cases he has seen and that VNS could help me if I decide to go that route. Being this procedure is fairly new, I was wondering if anyone here has had it done and your results thus far.
 
I’m not bragging about this, believe me. I wish I never had this crap. But something isn’t working (at least not well). It’s called my brain (and my meds). Too many recurring symptoms. Too many drugs don’t work or cause bad or paradoxical reactions. Four years and only a few months of temporary relief.
 
Peace
 
Jook

10 Answers
StrungOutOnLife answered 3 years ago

Re: VNS- anyone with any experiences?
I’m afraid it hasn’t really been studied for bipolar disorder.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
There have been patients (or should I say doctors?) trying this method. I remember reading a few posts on the old board or somewhere else. Can’t remember where.
 
If I remember it is an implant similiar to a pacemaker that sends pulses to the vagal nerve and regulates activity there.
 
Peace
 
Jook

Kassiane answered 3 years ago

Re: VNS- anyone with any experiences?
I’m trying like hell to get one, seeing as meds all try to kill me, don’t work, or both…this TH I really am asking pdoc how many pill bottles montana needs me to have before they’ll pay for it.
 
Kassiane

crazema answered 3 years ago

Re: VNS- anyone with any experiences?
Hello. I have a VNS implant which I’ve had for a year but I have no idea if its working because as most people on this site already know my recent history and have just changed meds so feeling not good. The few weeks after the op is what I would suppose it feels like to have a ‘boob job’ done. I have two 2inch scars but not extreme. No side effects for me except teeth grinding occaisionally since it started but it may be unconnected.  It affects your speech when it comes on but its like a bad cold. The biggest problem is how long it may take to work, it appears to be different for each person. Just ‘Google’ VNS or try the Ninewells/Dundee University website. Thats the hospital I went to, Dundee, (Tayside, Scotland).
Theyre a teaching hospital. As far as I understand my VNS is part of a study , I have to see a psychdoc every 2 weeks/month initially plus some testing of memory/cognitive skills over a period of time.  Hope some of this is of use.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
Crazema-
 
I assume by your statements that you still take meds? That sucks. I would think the whole concept of VNS would be to eliminate the need for meds. Did you have to sign a disclaimer?
 
My wife has an electrical implant in her neck that blocks pain signals to her brain. I would presume the VNS implant is similiar in some respects. Can you adjust pulse rate and intensity yourself or is it preset by the technician?
 
Jook

jookeyman asked 3 years ago

I talked to my Tdoc today and he brought up the possibility of VNS implant. He also told me that I was one of the toughest cases he has seen and that VNS could help me if I decide to go that route. Being this procedure is fairly new, I was wondering if anyone here has had it done and your results thus far.
 
I’m not bragging about this, believe me. I wish I never had this crap. But something isn’t working (at least not well). It’s called my brain (and my meds). Too many recurring symptoms. Too many drugs don’t work or cause bad or paradoxical reactions. Four years and only a few months of temporary relief.
 
Peace
 
Jook

10 Answers
StrungOutOnLife answered 3 years ago

Re: VNS- anyone with any experiences?
I’m afraid it hasn’t really been studied for bipolar disorder.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
There have been patients (or should I say doctors?) trying this method. I remember reading a few posts on the old board or somewhere else. Can’t remember where.
 
If I remember it is an implant similiar to a pacemaker that sends pulses to the vagal nerve and regulates activity there.
 
Peace
 
Jook

Kassiane answered 3 years ago

Re: VNS- anyone with any experiences?
I’m trying like hell to get one, seeing as meds all try to kill me, don’t work, or both…this TH I really am asking pdoc how many pill bottles montana needs me to have before they’ll pay for it.
 
Kassiane

crazema answered 3 years ago

Re: VNS- anyone with any experiences?
Hello. I have a VNS implant which I’ve had for a year but I have no idea if its working because as most people on this site already know my recent history and have just changed meds so feeling not good. The few weeks after the op is what I would suppose it feels like to have a ‘boob job’ done. I have two 2inch scars but not extreme. No side effects for me except teeth grinding occaisionally since it started but it may be unconnected.  It affects your speech when it comes on but its like a bad cold. The biggest problem is how long it may take to work, it appears to be different for each person. Just ‘Google’ VNS or try the Ninewells/Dundee University website. Thats the hospital I went to, Dundee, (Tayside, Scotland).
Theyre a teaching hospital. As far as I understand my VNS is part of a study , I have to see a psychdoc every 2 weeks/month initially plus some testing of memory/cognitive skills over a period of time.  Hope some of this is of use.

jookeyman answered 3 years ago

Re: VNS- anyone with any experiences?
Crazema-
 
I assume by your statements that you still take meds? That sucks. I would think the whole concept of VNS would be to eliminate the need for meds. Did you have to sign a disclaimer?
 
My wife has an electrical implant in her neck that blocks pain signals to her brain. I would presume the VNS implant is similiar in some respects. Can you adjust pulse rate and intensity yourself or is it preset by the technician?
 
Jook